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What is Histiocytosis?
Histiocytosis is a mysterious and sometimes fatal disease that affects about 1,000 children and adults in the United States each year. Although the cause and best treatment of this disease are unknown, scientist do know that patients with Histiocytosis have too many histiocytes, a form of white blood cell, growing in their bodies. These cells wildly multiply and can attack any part of the body, including bones, spleen, liver, lungs, skin and lymph nodes.The disease is similar to cancer in some ways and historically has been treated by Oncologist with radiation and chemotherapy. Unlike cancer, it sometimes goes into remission without treatment. Histiocytosis is so rare there is little research into its cause and treatment. Unfortunately, the pain and suffering associated with this disease are just as server as that with diseases that are well known and receive major research funding. The Histiocytosis Association of America is a leader in supporting and funding research into this disease and relies solely on private donations and fundraisers like the Jacob Open to accomplish their mission.
***This information is provided for informational purposes only. If you would like additional details please visit the Histiocytosis Association of America's web site at http://www.histio.org/us/
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